Comments on: Just Don’t Call Me Inspirational http://www.disabilityandrepresentation.com/2012/10/18/just-dont-call-me-inspirational/ Changing the Cultural Conversation Sat, 11 May 2013 13:47:42 +0000 hourly 1 http://wordpress.org/?v=3.5.1 By: Pam http://www.disabilityandrepresentation.com/2012/10/18/just-dont-call-me-inspirational/#comment-2169 Pam Sun, 28 Oct 2012 14:40:13 +0000 http://www.disabilityandrepresentation.com/?p=1054#comment-2169 Rachael,
I loved your post. Everyday I find more and more posts like yours…talking about life…talking about what is real! With each story I become a better parent because I increase my understanding of what is really important for raising and supporting my son. I have learned more from support groups and pages such as yours than in all the doctors offices over the past year. So I thank you for sharing your story and I look forward to trudging along side you.
Pam

]]>
By: JoyMama http://www.disabilityandrepresentation.com/2012/10/18/just-dont-call-me-inspirational/#comment-1858 JoyMama Sat, 20 Oct 2012 13:00:32 +0000 http://www.disabilityandrepresentation.com/?p=1054#comment-1858 I’ve been doing lots of thinking on this one, Rachel — thank you for that.

I’m finding myself wondering where the word “inspiration” fits in the real, and I think useful quest for a vision of my child’s future, for role models on a path that’s out of step with how much of the world works.

I blogged recently about an encounter with an autistic piano tuner who didn’t speak until he was eleven, and was able to move forward as a student when his mother realized that he responded to music as a way to teach and learn. I didn’t use the word “inspire” or “inspiration” in that post, but learning of his successes made me feel really good, as a mother of a child who does not yet speak (much) at eight, struggles to communicate in general, and responds to music as she learns to read and draw. The word “inspiration” does speak to, for me, at least some of what I felt as he tuned our piano.

How to navigate such a set of maternal feelings and wishes without engaging in disability inspiration porn?

]]>
By: Rachel Cohen-Rottenberg http://www.disabilityandrepresentation.com/2012/10/18/just-dont-call-me-inspirational/#comment-1832 Rachel Cohen-Rottenberg Fri, 19 Oct 2012 20:17:17 +0000 http://www.disabilityandrepresentation.com/?p=1054#comment-1832 Oh my goodness, Jon — the person who wrote “Finding Our Fathers” is my brother-in-law, Dan Rottenberg (brother to my husband Bob)! Their grandfather, Marcus Rottenberg, was instrumental in the development of the Society for the Advancement of Judaism with Mordechai Kaplan. I will email you to talk more!

]]>
By: Jon Baker http://www.disabilityandrepresentation.com/2012/10/18/just-dont-call-me-inspirational/#comment-1831 Jon Baker Fri, 19 Oct 2012 20:03:28 +0000 http://www.disabilityandrepresentation.com/?p=1054#comment-1831 Since I can’t find an email address for you, I’m sending this as a comment.

Are you (or maybe your husband) descended from the Rottenbergs (e.g. Samuel Rottenberg) who were involved in the founding of the Brooklyn Jewish Center on Eastern Parkway and Brooklyn Avenue just after WWI?

I find the name “Cohen-Rottenberg” amusing, because the two big factions in that founding were my great-grandfather, Louis Cohen, who wanted the place to be Orthodox, and Samuel Rottenberg, who wanted it to be Conservative. Rottenberg won, having put up more money. The two families are buried across the path from each other in the BJC plot at the Old Montefiore Cemetery, glaring at each other, as it were.

Since there wasn’t much real difference liturgically between the Conservative and the Orthodox before WW2, the Cohens stayed active in the shul, until they lost their money in the Depression and moved to Manhattan. Another Rottenberg wrote a book on genealogy called “Finding our Fathers”; he grew up in the building next to my parents’ in Manhattan.

Contact me at thanbo at gee-mail dot com.

]]>
By: adkyriolexy http://www.disabilityandrepresentation.com/2012/10/18/just-dont-call-me-inspirational/#comment-1828 adkyriolexy Fri, 19 Oct 2012 18:27:13 +0000 http://www.disabilityandrepresentation.com/?p=1054#comment-1828 “Beating the odds” is another one.

]]>
By: Jennifer Brunton http://www.disabilityandrepresentation.com/2012/10/18/just-dont-call-me-inspirational/#comment-1824 Jennifer Brunton Fri, 19 Oct 2012 15:37:29 +0000 http://www.disabilityandrepresentation.com/?p=1054#comment-1824 Can we use a different word? As a Mom on the spectrum with a child on the spectrum, I do think about his disability as something that will present major challenges in just such situations as marriage, parenting &c and I look to myself (learned to drive in late 30s! yay! finally married right, decent, trying-hard parent…) and You as people who show that people with neurological differences can find ways around the obstacles presented to us as a matter of course by a largely neurotypical world…This is specific to this particular type of crip-itude and seems fair enough to me, but take me down if you must. Love

]]>
By: wjpeace http://www.disabilityandrepresentation.com/2012/10/18/just-dont-call-me-inspirational/#comment-1769 wjpeace Fri, 19 Oct 2012 13:12:53 +0000 http://www.disabilityandrepresentation.com/?p=1054#comment-1769 I have been “inspiring” people for 34 years. Not once have I ever felt I did a thing to be deemed inspiring. Inspiring is inherently dehumanizing. What is really being stated is you are normal and the expectations set for you are so low the most ordinary action is an achievement. Wow, you are married translates to the unspoken belief you are asexual, not worthy of marriage. I often get wow, you can get wheelchair in and out the car all by yourself. This translates to you have a dysfunctional body I want to avoid. In short, inspirational to me is a form of social oppression whereby those with typical (normal) bodies can assert their power and justify exclusionary practices.

]]>