Comments on: Deconstructing Autism as an Empathy Disorder: A Literature Review http://www.disabilityandrepresentation.com Changing the Cultural Conversation Tue, 24 Sep 2013 03:32:09 +0000 hourly 1 http://wordpress.org/?v=3.6.1 By: Creating Hierarchy and Fear: Don’t Let Them Make You Doubt Your Experience | Disability and Representation | Changing the Cultural Conversation http://www.disabilityandrepresentation.com/deconstructing-autism-as-an-empathy-disorder-a-literature-review/#comment-770967 Creating Hierarchy and Fear: Don’t Let Them Make You Doubt Your Experience | Disability and Representation | Changing the Cultural Conversation Thu, 12 Sep 2013 07:02:03 +0000 http://www.disabilityandrepresentation.com/?page_id=525#comment-770967 […] of you know, I’ve done a lot of work critiquing research into autism and empathy — both in my academic life and online at my Autism and Empathy site. One of the driving factors behind this work was an […]

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By: empathy explored – and ignored « a diary of a mom http://www.disabilityandrepresentation.com/deconstructing-autism-as-an-empathy-disorder-a-literature-review/#comment-398923 empathy explored – and ignored « a diary of a mom Mon, 10 Dec 2012 18:46:59 +0000 http://www.disabilityandrepresentation.com/?page_id=525#comment-398923 [...] HERE for one of my favorite articles on the topic. Share [...]

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By: jill marlene http://www.disabilityandrepresentation.com/deconstructing-autism-as-an-empathy-disorder-a-literature-review/#comment-6291 jill marlene Mon, 12 Nov 2012 06:35:46 +0000 http://www.disabilityandrepresentation.com/?page_id=525#comment-6291 I have been recently thinking that it is not that the person on the spectrum lacks the ability to experience the emotion of another or sometimes to feel the commensurate compassion. They may be more likely to respond as though it were happening to THEM as a result of some sort of a warning system where the fight or flight is activated the ability to discern the subtleties in the environment that would help the individual understand the situation is dampened by the intensity of the amygdula response. They see strong emotion, feel the emotion and then the fight or flight takes over and they cannot respond appropriately to the other person’s emotions. I really think this has some merit as there seems to be a disconnect in communication between the frontal cortex and the autonomic fight or flight response systems in the neuro research. What say you?

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By: Kate http://www.disabilityandrepresentation.com/deconstructing-autism-as-an-empathy-disorder-a-literature-review/#comment-1347 Kate Thu, 04 Oct 2012 08:53:14 +0000 http://www.disabilityandrepresentation.com/?page_id=525#comment-1347 Rachel, thanks for the personal clarification of your standpoint on the issue; I was not able to find clarification of it on the Autism and Empathy site per your specific personal point of view, as this is the only link that directly addressed the issue I could find from you as an author, on the AutismandEmpathy site; I did not notice that link took me to a different internet site, until you mentioned the site in your response here.

While I could not find a post from you on the other site specific to research, the information on that site, in this post: http://www.autismandempathy.com/?p=1108 describes the research on Alexithymia, the deficits in affective empathy, and the association co-morbid with Autism Spectrum Disorders in more detail. I used that reference from your site to explain to the other source that your site could not possibly be suggesting that individuals with ASD’s do not experience trouble with empathy, as that post provided evidence some clearly do because of associated problems with Alexithymia, along with the very high prevalence of that co-morbid at 85% of individuals on the spectrum.

The source insisted I was reading the research incorrectly, and I explained I left a comment for you to provide my reading of the research. I was hoping you might provide a direct clarification of your viewpoint to clarify any misinformation that might continue to be propagated by the other source, as that source ascribes high value to your site as a reference point.

I enjoyed reading all the posts on your autismandempathy site and found them very informative. I’m sure that many people appreciate the time and effort you have taken to dispel the stereotype that all people on the spectrum lack empathy, as the information you provide does a thorough job of debunking that universal stereotype that has been provided by some.

My comment was intended to emphasize the issue associated with Alexithymia, Autism, and Empathy, in case others were directed to your site by the same source that directed me to it. I apologize as I can see where it could be read as a disagreement with your research rather than an amplification of the information provided in the sources cited in your research paper, and from the post on the Autismandempathy site, I linked above.

Sorry, I took so long to respond back, I just noticed you posted my comment today.

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By: Rachel Cohen-Rottenberg http://www.disabilityandrepresentation.com/deconstructing-autism-as-an-empathy-disorder-a-literature-review/#comment-1160 Rachel Cohen-Rottenberg Tue, 25 Sep 2012 04:53:59 +0000 http://www.disabilityandrepresentation.com/?page_id=525#comment-1160 Kate, I’m not sure why you’re taking issue with Karla’s comments here on my blog. I have done a great deal of critical analysis of the autism and empathy issue, as you’ll see from the posts on my Autism and Empathy site at http://www.autismandempathy.com. If you’re not familiar with my writing, let me clarify: I have never said that all people with autism experience and express empathy in the same way and to the same degree. I have always said that, among autistic people — as among any other group of people — there is a range of empathic response and expression. I have always spoken out against overgeneralization on this issue as on many others, and I have always been very vocal about the diversity in our community.

People are always welcome to come here and disagree civilly about anything I write, but it’s really impossible to have a conversation about the content of my writing when the critique is about things I’ve never said. If Karla adduced my writing as evidence for conclusions I don’t share, please have a conversation with her about why she came to those conclusions and why she feels that my writing supports them.

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By: Kate http://www.disabilityandrepresentation.com/deconstructing-autism-as-an-empathy-disorder-a-literature-review/#comment-1056 Kate Sat, 22 Sep 2012 00:24:07 +0000 http://www.disabilityandrepresentation.com/?page_id=525#comment-1056 I left a comment on another page, as I did not immediately see this one, but it was disconcerting to me to find a person that reports they are on the spectrum, Karla, from Karla’s ASD page to provide this page, in evidence for a claim that it is b**lsh*t that people on the spectrum experience trouble with empathy. She claimed no one on the spectrum experiences difficulties expressing empathy

It is important to note that the research above done in 2010, that actually measures the response of the brain, per empathy associated with the pain of other individuals, reflects an association of Alexithymia and difficulties among people on the spectrum identified with that co-morbid condition, but not for those identified on the spectrum without that co-morbid condition. That might not be a significant issue for people on the spectrum if Alexithymia was not evidenced as co-morbid among 85% of individuals on the spectrum.

http://en.wikipedia.org/wiki/Alexithymia

As a person on the spectrum that experiences extreme empathy, I think it is important for the general public to understand that significant problems with empathy are not an issue that all people on the spectrum have difficulties with, but on the other hand it is not fair to those on the spectrum with these difficulties, whether or not they are caused by Alexithymia co-morbid with 85% of ASD’s, to discount the problem that exist among some people on the spectrum, as some do identify the issue and some worry over the fact that this already sets them apart from others; it does them no good to hear that people on the spectrum do not share this issue as well, when in real life some do.

Alexithymia may actually be a defense mechanism for some that at one time could not deal with the extreme response of empathy, but the difficulties in sharing the feelings of others and expressing empathy that result, are just as real no matter what the cause of the difficulties are. It’s not as simple as suggesting that all people on the spectrum have extreme empathy, as it is a diverse spectrum, with diverse expressions of gifts and challenges.

Here are some of those voices that deserve to be heard in context with this issue, for a more diverse analysis in respect of the difficulties that do exist associated with empathy among some individuals on the spectrum, as it is not likely that they would feel comfortable enough to come here and express those difficulties. While it is definitely a problem that a stereotype exists among some that everyone on the spectrum lacks empathy, it would not be accurate to suggest that a significant number of individuals on the spectrum do not lack difficulties sharing and expressing empathy with other people.

http://www.wrongplanet.net/postt204663.html

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By: Rachel Cohen-Rottenberg http://www.disabilityandrepresentation.com/deconstructing-autism-as-an-empathy-disorder-a-literature-review/#comment-98 Rachel Cohen-Rottenberg Tue, 03 Jul 2012 14:04:59 +0000 http://www.disabilityandrepresentation.com/?page_id=525#comment-98 That’s certainly true. It’s one of the reasons that, in the review, I suggest more thorough analyses of all the test instruments, including the Autism Quotient (AQ) and the Systemizing Quotient (SQ).

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By: Tam http://www.disabilityandrepresentation.com/deconstructing-autism-as-an-empathy-disorder-a-literature-review/#comment-97 Tam Tue, 03 Jul 2012 05:04:25 +0000 http://www.disabilityandrepresentation.com/?page_id=525#comment-97 Another problem that I don’t see pointed out here, is that if there are problems with the assessment tests used to identify autistic subjects in the first place, then the very basis for the populations of the studies comes into question.

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